RA Gimp

Hip Pain

2012-02-28T19:36:00.000-08:00


CLICK TO ENLARGE

Hip pain may be caused by many factors. The location of the pain gives a clue as to the cause of the pain. Many factors can contribute to the underlying cause.

Enthesitis is an inflammation at the insertion point of a muscle. There is a strong tendency for calcification. There is usually pain only when the muscle is used.

True hip pain caused by the hip joint, is located in the groin area. It is usually located over the inguinal ligament. Occasionally iliopsoas bursitis may mimic true hip pain.

The iliopsoas bursa lies between the psoas muscle-tendon and the pubic bone on top within the femur.

Meralgia paresthetica is usually felt on the outer part of the thigh and is characterized by tingling, numbness and a burning pain. It's caused by compression of the nerve and can be caused by tight clothing, obesity, pregnancy, trauma or disease.

Sacroiliac pain can range from sharp to an ache and it may radiate out into the buttocks, low back, and groin. The sacroiliac joints are located in the back on either side of the spine and help form the pelvic girdle.

Buttock pain is usually referred pain from the lumbo-sacral spine or lower back.

Trochanteric bursitis is usually localized to laterally over the trochanteric bursa. Due to the depth of this bursa, warmth and swelling are usually absent. Diagnosis can be confirmed by inducing point tenderness.

Ischiogluteal bursitis is inflammation of the bursa covering the ischial tuberosity. (the bone that protrudes on the buttock when sitting) This type of bursitis causes pain in the buttocks.

Sciatic is pain, numbness, weakness and tingling in the thigh. It may be caused by injury to or pressure on the sciatic nerve.

http://medical-dictionary.thefreedictionary.com/enthesitis
Harrison's Rheumatology 2nd edition; Editor: Anthony S. Fauci
http://bursitistendonitis.com/iliopsoas-bursitis
http://www.mayoclinic.com/health/meralgia-paresthetica/DS00914
http://www.sportsinjuryclinic.net/sport-injuries/low-back-pain/sacroiliac-joint-pain
http://www.livestrong.com/article/24542-ischial-bursitis-symptoms/#ixzz1njovGLgB
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001706/

When Should A Cane Be Used with RA?

2012-02-21T17:39:00.000-08:00

In one of our on-line support groups we have been discussing when to use a cane or walker with RA.

After doing some research, I found an article that urges RA patients to use a cane as soon as standing up and walking becomes challenging. Canes may protect the joints, even before significant damage is evident. Using a can also helps relieve pain in the hips, knees, and ankles.

It is important that your cane be the correct height. If it is too short, you will be hunched over and if it is too tall, your shoulder will be hiked up. Either will cause unnecessary pain.

To measure a cane, hold your arm straight. The handle of the cane should come to your wrist. When using the cane, your arm will be crooked at a 30 degree or less angle.

Also make sure the handle is comfortable. RA hands have special needs and the grip should not hurt when it is used every day. I have two canes. My first cane had a wooden handle and it hurt after a few hours of use. I now have a gel-handled cane and it is much more comfortable.

So why do we balk at using this assistive device? Is it because when we use a cane, our disabilities become more real, more visible?

While it is difficult to take the next step and begin using a cane, it is important for those of us who suffer from RA to think about long-term consequences. Use of a cane provides stability and few falls and also helps prevent joint damage.

http://www.everydayhealth.com/rheumatoid-arthritis/using-a-cane-for-rheumatoid-arthritis.aspx by Connie Brichford

Cricoarytenoid Rheumatoid Arthritis

2012-01-23T18:05:00.000-08:00

Rheumatoid Arthritis can affect any join in the body, including the joints that make up the larynx or voice box. (Click on photo below to enlarge)


2008 Trailsight Medical Media

The cricoarytenoid joint is the joint between the cricoid and arytenoid cartilages. This joint is rotated by the vibration of the vocal cords thus changing the tone of the voice.

While cricoarytenoid arthritis is typical in RA, (between seventeen and seventy-five percent of RA sufferers develop it) a large number of RA patients do not realize their symptoms of hoarseness, pharyngeal fulness in the throat when speaking or swallowing, pain in the ears, and shortness of breath may be directly related to laryngeal RA. Hoarseness is the most frequently noted symptom.

Emergent airway closure is not seen often but can develop in patients with CA joint involvement. Patients with persistent hoarseness, pain when swallowing, talking or coughing, shortness of breath, or a sensation of fullness in the throat should contact their physician.

Oxford Journal of Rheumatology; Volume 40, Issue 5 p 593-594; Kamanli, A; Gok, U.; Sahin, S; Kygusuz, I; Ardicoglu, O; and Yalcin, S
http://arthritis.about.com/od/othercond/a/cricoarytenoid_joint_utd.htm

Blood Tests in Rheumatoid Arthritis

2012-01-05T12:17:00.000-08:00

There are a myriad of lab tests associated with Rheumatoid Arthritis. What do these tests mean and why are they done?

One test your rheumatologist will probably order is the Rheumatoid Factor (RF). In seventy to eighty percent of people diagnosed with RA this test will be positive but twenty to thirty percent of RA sufferers will have a negative RF. Results may also change over the course of the disease.

Another test you may have done is the Anti-CCP Antibody test. This test may or may not be positive in RA but if it is positive, the likelihood of having RA is around ninety percent. The anti-CCP also indicates that the disease is likely to progress more rapidly.

The ANA or Anti-nuclear Antibody tests measure the immune-system chemicals that indicate autoimmune disease. Around thirty to forty percent of RA patients test positive for ANA. This test may also be positive in many other auto-immune diseases.

ESR or Erythrocyte Sedimentation Rate tests for inflammation by measuring how quickly red blood cells separate out of the blood and settle to the bottom of the tube.

Another test for inflammation is the CRP or C-Reactive Protein. This is a protein produced in the liver during periods of high inflammation or infection. These levels change more quickly than the ESR so this is a test used to measure the effectiveness of treatment.

A CBC or complete blood count is another test usually done. This gives the rheumatologist information regarding your hemoglobin, red blood cell count, platelet and white blood cell count. In RA, the platelets may be increased and since the white blood cells indicate immune system activity, they may also be increase. The hemoglobin may be decreased, indicating anemia.

A fairly new test on the market is the Vectra DA test. This test is a multi-biomarker blood test for RA disease activity. It measures twelve proteins associated with RA disease activity and integrates them into a single objective score. It has been validated for adults diagnosed with RA and is not a diagnostic tool but rather a disease activity indicator.

This list of tests is not all inclusive as your rheumatologist will determine which blood tests are appropriate for you. Other tests that may be done include, liver enzymes and kidney function tests, just to name a few.

Your rheumatologist will use all of the testing done in conjunction with your clinical picture to work with you and determine a plan of action for your treatment.

Rheumatoid Arthritis Tests By the Healthline Editorial Team; Reviewed by Norstrom, Olag M. Sc., M.A. 07/29/2010
DiagnosticTests for Rheumatoid Arthritis by Nicole Van Hoey; March 11, 2010
http://www.vectra-da.com/

Assistive Devices

2012-01-01T19:51:00.000-08:00

Assistive devices not only make life easier for the person suffering from autoimmune arthritis but they can also protect the joints from further damage.

Here are some of the devices that I either use or think would be helpful.

I have a bottle opener that I use on a daily basis. On one end it is flat so that it will slide under the pull tab on a drink can and the other end has a sharpish bag opener. (Well mind did have that until I dropped it and broke it.)

The Good Grips peeler is another device I have. Before I got this, my hubby had to do all of the veggie peeling. Now I can do some of it but I still have trouble chopping up a lot of the veggies.

The gas cap turner will probably be the next device I buy. At the gas station the other day, I came very close to asking a man in the bay next to me for help because I had trouble removing the gas cap.

I also use a medication cap opener similar to the one above. Mine has a magnifier in one end so you can see the name of the medication without too much trouble.

I used to have wax bath for hands but it wouldn't work for feet. The large wax bath system is on my RA wish list since they are large enough for feet, hands and even elbows.

I have used the bird pen in the past when I had many hours of nursing documentation to do by hand. It did help relieve the stress on my fingers.

For those who have trouble getting in and out of bed, a bed cane can be a great benefit.

Carry handles for grocery bags can make bringing the groceries in a little less painful. The bags have such thin handles that they cut into the poor painful hands and this alleviates that problem.

Arthritis gloves keep the joints warm and provide light compression for those inflamed joints. In the winter, I wear mine under my regular gloves to help keep my hands even warmer.

Gripping playing cards can cause pain in arthritic fingers and these will help alleviate that pain.

Door knob turners help prevent undue stress on fingers and hand joints. They also make it a little easier to open doors.

Canes can be beneficial for those times when the feet, ankles, knees or hips are flaring and mobility is limited. I keep a cane in my car even though I don't use it much. I have learned to use it more when we travel to help prevent falls.

I do recommend getting a cane with a gel grip. I have two. One with a wooden handle and one with the gel grip. The gel grip cane was purchased after using the wooden handled cane in Disneyland. The hard wooden handle made my hands ache.

There are many more devices that can make the life of the RA sufferer a little easier. These can be found on the internet and many local drug stores carry quite a few of these devices.

Try out some of them and I think you'll find that they make life much easier.

1.) LivingBetter With Arthritis

Depression Revisited

2011-12-22T14:15:00.000-08:00

Depression in the extreme can lead to suicide. As the young woman in this video demonstrates, suicide cuts a wide swath of destruction through the lives of those left behind.

While depression is common in RA and other autoimmune diseases, my battle with severe depression came long before my diagnosis.

This post is probably the hardest one I've ever written. While I love to write, my writing usually revolves around facts or fiction. Rarely do I write anything as deeply personal as this but I felt compelled to share my story.

My battle with depression began when I was in junior high. It had nothing to do with life circumstances or having had a bad childhood. Just the opposite. I had loving parents who were always there for me. My family was a good, decent family.

So often, when someone is depressed and commits suicide, we hear people wondering if they have been abused or unloved. In my situation, that was not the case. I was not abused and I was very loved.

People also say, "If only the kids could see this problem is temporary." For me, there were no problems that caused me to be depressed. It had nothing to do with a boy or with other kids picking on me.

I just felt inconsequential. No purpose. Useless. I felt that every breath I took was a waste of oxygen. While I had friends I ran around with and I enjoyed life in many ways, in the back of my mind there was always that thought that my life held no meaning.

In high school, the depression continued and I became suicidal. I thought about ways to kill myself but I didn't want to hurt my parents so I never followed through on any of those thoughts.

After high school, I got married. Marriage is difficult under the best circumstances but when two immature kids get married, it's impossible. As my marriage fell apart, my feelings of uselessness increased.

I was in nursing school and working full-time trying to make a life for myself but I still felt that I was a waste of breath. During this time is when I really began to think about suicide. In my mind, I thought if I could make my death look like an accident, my parents wouldn't be as hurt.

Late one night I drove down the interstate and decided I couldn't take my life anymore. I was going to drive straight into the pylons holding up the overpass. My parents knew I drove too fast and they would think it was just an accident. Right? They would be okay.

As I drove towards the overpass, gaining speed, A voice spoke to my heart. I knew the voice was God's. The voice told me that I wouldn't die but I would be a vegetable that my parents had to care for. For the rest of my life.

I pulled over on the shoulder and sat and cried. After all, if I was a waste of breath and a burden when I could take care of myself, how much more of a waste would I be with my parents having to tend to my every need?

During this time, I began to see that suicide would hurt those I loved the most and I began to understand that if God made me, formed me in the womb with His own hands, I could not be a waste of breath.

I recovered from my depression with God's help and the help of a wonderful, Christian counselor. He helped me see that my life did have meaning and purpose.

If you are struggling with depression, please seek help. Reach out. There are people who care about you and would be devastated if you disappeared from their lives.

Joint Protection in RA

2011-12-19T20:07:00.000-08:00

Joint protection in Rheumatoid Arthritis is very important to help prevent damage, preserve joint function and to manage day to day pain. RA can cause permanent damage and the affected joints cannot tolerate the pushing, pulling and stress that a healthy joint can.

It's important to move your joints through full range of motion exercises each day but use caution and do not move past the point of a tolerable stretch. Move slowly and methodically as you go through the range of motion exercises. Listen to your body. Some days you will have a greater range of motion in your joints than other days.

When using your hands, don't use movements that push your fingers toward the pinkie finger. Instead, push your hands in the other direction. When wiping a counter, for example, make a point of wiping in the direction with the little finger leading, this will push your fingers toward the thumb instead of toward the pinkie finger. Also, grip the sponge or rag losely and not with a tight grip.

Writing with a small pen or pencil for prolonged periods places stress on the finger joints. Use a fat pen or build up your pen with foam. Also, look for gel ink or other pens that have easy ink flow and require less pressure.

If you are opening a package, don't try to pull it open with your fingers, use scissors, a knife or other utensil to prevent undue stress on your joints.

Something as simple as turning a key can add to joint damage. Use a built up key or a key turner when opening locks, starting your car or locking doors.

Also avoid making tight fists. Use ergonomic handled tools and kitchen tools. Good Grips makes a line of ergonomic grips to help prevent damage to the hands. You can also use foam to build up handles on kitchen tools, yard tools, or home tools.

It's also important to use fat handled mugs or cups instead of the dainty cups with a small handle.

It's also important to carry things like laundry baskets with open hands. Hold books, plates, bowls, etc with a flat palm. When reading, if you are going to read for a prolonged period, use a book holder or rest your book on a pillow as you read.

You can also download a PDF file Here from Kleinert Institute that includes many ideas for joint protection.

1)RheumatoidArthritis Pain: Tips for protecting your joints – Mayo Clinic
2) Klienert Institiute Joint Protection Program Handbook

Depression and Rheumatoid Arthritis

2011-12-07T19:03:00.000-08:00

Depression and Rheumatoid Arthritis seem to go hand in hand. In fact, according to a research study funded by the Arthritis Foundation, a recent diagnosis of RA and the associated disability put the patient at a greater risk for developing depression. In addition, outcomes are generally worse for RA patients who suffer from depression as compared to those who do not.

Another study from 2008 showed that RA patients are twice as likely to experience depression but most do not discuss this with their physicians. The study showed that almost eleven percent of RA patients suffered from moderate to severe symptoms of depression but only one in five would discuss these symptoms with their physician.

While we all feel blue or sad at times. If these feelings become overwhelming or last for long periods of time then they interfere with the patent's ability to enjoy life and live a normal, active life. At this point, the patient should seek medical help for clinical depression.

Failure to seek help for depression can result in worsening of the symptoms and suicidal thoughts or attempts.

They symptoms of Depression include:

difficulty concentrating, remembering details, and making decisions
fatigue and decreased energy
feelings of guilt, worthlessness, and/or helplessness
feelings of hopelessness and/or pessimism
insomnia, early-morning wakefulness, or excessive sleeping
irritability, restlessness
loss of interest in activities or hobbies once pleasurable, including sex
overeating or appetite loss
persistent aches or pains, headaches, cramps, or digestive problems that do not ease even with treatment
persistent sad, anxious, or "empty" feelings
thoughts of suicide, suicide attempts

Because depression can result in death, anyone who expresses suicidal thoughts or intentions must be taken seriously. If you or someone you care about is having these feelings, seek medical attention immediately or call the suicide hotlines:

1-800-SUICIDE (1-800-784-2433)
1-800-273 TALK (1-800-273-8255)
1-800-799-4TTY (1-800-799-4889) Deaf hotline

Warning signs of suicide may include:

a sudden switch from being very sad to being very calm or appearing to be happy
always talking or thinking about death
clinical depression (deep sadness, loss of interest, trouble sleeping and eating) that gets worse
having a "death wish," tempting fate by taking risks that could lead to death, like driving through red lights
losing interest in things one used to care about
making comments about being hopeless, helpless, or worthless
putting affairs in order, tying up loose ends, changing a will
saying things like "It would be better if I wasn't here" or "I want out"
talking about suicide (killing one's self)
visiting or calling people one cares about

Depression is not something to be embarrassed about. It is a medical problem that will not improve without help. If you are having symptoms of feeling down or blue that don't go away, talk to your physician before the depression becomes worse.

Remember, you do not have to face this alone.

1) Research Update: Depression and Rheumatoid Arthritis
2) Depression in Rheumatoid Arthritis Patients
3) Signs of Clinical Depression

Facing the Holidays with Fatigue

2011-12-02T20:45:00.000-08:00

Rheumatoid Arthritis and the accompanying autoimmune diseases cause severe fatigue. This lack of energy is more than just feeling tired. It causes a debilitating fatigue that is often worse upon waking up from a full-night's sleep.

RA can also cause anemia, adding to the fatigue that makes daily life difficult and when when the holidays roll around, trying to complete the cooking, decorating and Christmas shopping may be overwhelming.

Some ways to cope around the holidays and everyday:

Prioritize - think about which things are the most important to you and do those first.
Ask for help -It's difficult for those without RA to understand the fatigue but once you explain it to them, many will be more than willing to help. Ask them to assist with specific things. If your friend is going to the store, ask her to pick up something for you while she's there. Ask family members, to help with the housework, laundry, etc.
Eat a well-balanced diet - Divide your plate in half and then divide one of the sides into fourths. Half of the plate should be vegetables, one-fourth meat and one-fourth carbohydrate. For snacks, try to stick to fruits and vegetables.
Exercise - It's difficult to exercise when you feel exhausted but lack of exercise creates a vicious cycle. After checking with your physician to ensure you are healthy enough to exercise, begin small, walk in place during commercials while watching TV and slowly build until you can walk around the block.
Rest - Get plenty of sleep. People with RA need at least ten hours of sleep per night. An afternoon nap of thirty-minutes to one hour will help re-energize you also.
Take medication - Take your medications to keep the inflammation in check. When you have increased inflammation, your fatigue will be worse.
Decorating - When decorating for Christmas, don't go all out. Put out a few of your favorite things, buy a small tree and just enjoy the season without pushing yourself to the point that exhaustion overwhelms you.
Meals - Allow others to cook Thanksgiving and Christmas dinners. If you choose to prepare part of the meal, have other family members bring side dishes. Or for a totally different twist, have sandwiches or finger foods. Purchasing a pre-cooked meal is another option. Many restaurants will prepare the entire dinner for you and all you must do is pick it up. Or ask a family member pick up it up.
Shopping - Try cyber shopping. There are some great sites out there and many of them will even send your gifts directly to the recipient - Amazon will even gift-wrap for you.
Wrapping - instead of going all out making the packages look just perfect, opt for gift bags or have the store do the gift wrapping.
Christmas Cards - If you feel the need to send Christmas cards, order pre-printed ones so you don't have to write out each one. If you order photo cards from Snapfish, you can upload your mailing list, and they will address them and send them out for you.

The main thing to remember during the holiday season, is not to over extend yourself. It's very easy to want to do all of the special things this time of year and attend all of the Christmas parties and fun functions but balancing these desires with your energy level is imperative in order to enjoy the Christmas season.

1) Adapted from the West Texas Cancer Center Patient Education Handbook

Sjogren's Syndrome

2011-11-21T18:23:00.000-08:00

Sjogren's syndrome, more than just a dry mouth and dry eyes, is an autoimmune disease. In people with an autoimmune disease, the person's white blood cells attack healthy tissue. In the case of Sjogren's, the white cells attack the moisture producing glands.

In addition to dry mouth and eyes, Sjogren's can also affect other organs, blood vessels, the central nervous system and even increases the risk of developing lymphoma.

The symptoms of Sjogren's may include dry mouth, increased cavities, gum disease, swallowing difficulty, dry eyes with a gritty sensation leading possible eye infections, inflammation of the airways leading to infection and even vaginal dryness and infections.

Sjogren's symptoms are not isolated to the moisture producing glands. This disease also causes extreme fatigue, joint pain, Raynaud's syndrome and an increased risk of developing lymphoma.

Since many of the symptoms of Sjogren's can mimic those of many other diseases, diagnosis is often delayed. To complicate matters, Sjogren's may occur alone, known as primary Sjogren's or in conjunction with other autoimmune disease like Rheumatoid Arthritis or Lupus.

Diagnosis involves observing clinical features of dry eyes and mouth and possibly Schirmer tear test strips to confirm reduced tear production. Salivary glands may become enlarged and feel firmer on palpation than normal glands. Salivary gland scans may also be done to detect inflammation. A salivary gland biopsy may also be done under local anesthesia.

Lab work may reveal a positive ANA (antinuclear antibodies), SS-A and SS-B antibodies (Sjogren's syndrome A and B antibodies), rheumatoid factor, thyroid antibodies and others. The sufferer may also have anemia and abnormal inflammation markers.

Most treatment is directed at managing symptoms. Artificial tears, Restasis, lacrimal plugs are all ways to manage dry eyes. Dry mouth may be managed by increasing fluid intake, Biotene sprays and mouthwashes, and Salagen are all ways to manage oral dryness. Nasal dryness may be helped by using nasal saline sprays. If vaginal dryness is a problem, a lubricant should be used during sexual intercourse.

Additionally, hydroxychloroquine (Plaquenil) may help with fatigue, muscle and joint pains. If the patient develops vasculitis, the patient may require immunosuppressive drugs like prednisone, azathioprine or cyclophosphamide.

Prognosis for the patient with Sjogren's is usually very good but the patient must work closely with the ophthalmologist and dentist. Exceptional oral hygiene is imperative to prevent dental issues and prevention of corneal abrasions is important to promote eye health and prevent vision problems.

Raynaud's Syndrome

2011-11-17T19:10:00.000-08:00

People with Rheumatoid Arthritis frequently have Raynaud's syndrome. This syndrome is characterized by painful extremities when exposed to cold temperatures.

Raynaud's, named for the identifying French physician, Maurice Raynaud, causes an interruption in blood flow to fingers and toes. Ears and nose may also be involved. When the extremity is exposed to cold or the sufferer is under stress, the blood vessels spasm. This causes the extremity to turn white then blue then bright red over the course of the attack.

Tingling, swelling and painful throbbing are associated with the Raynaud's spasm. The attack may last from minutes to hours and in the most severe cases ulcerations may develop which can lead to infections and gangrene in the extremity.

RA sufferers develop what is known as secondary Raynaud's syndrome. Meaning, the syndrome is secondary to the Rheumatoid Arthritis.

There is no cure for this condition and in fact, the cause of Raynaud's is unknown. While there is no cure, there are some treatments that may help with the symptoms.

Avoiding cold temperatures, wearing gloves in cold weather and when accessing freezers, reducing stress, regular exercise, relaxation techniques and a type of medication called calcium channel blockers (frequently used for high blood pressure) may all help reduce the severity of Raynaud's spasms.

Development of ulcerations from Raynaud's can lead to gangrene in the extremity so the importance of seeking medical attention upon development of an ulceration must be stressed.

1)Raynaud’s Association - 2011
2) WebMd 1996 - 2008

Rheumatoid Arthritis Basics

2011-11-06T20:01:00.000-08:00

The name, Rheumatoid arthritis, is in many ways a misnomer. RA is so much more than arthritis. It is a disease that affects the every aspect of the person who suffers from it.

RA is a chronic, autoimmune disease characterized by severe fatigue, fever, morning stiffness, swelling and pain in the joints. It can result in loss of function of the joints.

Autoimmune diseases are characterized by the body's immune system attacking healthy tissue. This results in a variety of symptoms such as flu-like symptoms including overall aching, muscle aches, loss of appetite, and weight loss in addition to the joint pain, stiffness and swelling.

The causes of RA are unknown but there is a genetic predisposition to developing this disease. Simply stated, it is not a directly inherited disease but the tendency to develop the disease may be inherited.

Those between the ages of thirty and fifty years old are most likely to develop RA though it can occur at any age, even in early childhood. RA affects women more often than men.

Early detection and aggressive, early treatment are key to lessening long-term joint damage. RA can begin damaging the bones within a year from the onset of symptoms.

Almost all joints of the body may be affected. RA may present differently in different people. For example, one person may present with knee involvement while another may present with hand involvement. Others, may present with a migratory arthritis. In other words, the arthritis may move from joint to joint.

RA usually develops symmetrically. If the sufferer has arthritis in one hand, the other hand will develop arthritis. In addition to arthritis, the person with RA may develop tendon involvement.

Systemic manifestations of RA are common. These include rheumatoid nodules, cardiovascular disease, anemia, chonic leg ulcers, non-Hodgkin's lymphoma, osteoporosis, Sjogren's syndrome, pulmonary complications including pleurisy and rheumatoid lung nodules, pericarditis, Raynaud's syndrome.

FOOTNOTES

1) "Genetic Basis for Rheumatoid Arthritis." PubMed. December, 2005.

2) Rheumatoid ArthritisOverview. WebMD 2011

3) UnderstandingRA – RA.com 2011

4) Arthritisand joint Conditions - 2011

5) Best Pract Res Clin Rheumatol. 2007 Oct;21(5):907-27.

Faces of Rheumatoid Arthritis

2011-11-02T18:17:00.000-07:00

Meet Peggy Piscapo - Here is her story. You can also find her story on her blog - http://raforwardmotion.blogspot.com

My life was a normal one.. Wife, Mother, Sister, Daughter and Friend.    I had a fork in the road called RA. On July 26th I was officially diagnosed with RA. I had been having a lot of pain and swelling for several months and couldn't figure out why... I am only 42 and "I didn't Look Sick".   I had my husband come to this visit, so he could grasp the fact that I was sick.

Sitting in the doctor's office, I saw people in wheel chairs and have "old people" shoes on. They were all much older than me. We were in shock when the doctor handed me 9 prescriptions. Tons of brochures on RA drugs. I needed a backpack to carry all the info out of the doctor's office. My husband and I went to the car and drove to Sonic Burger... where we sat in shock...and drank cherry lime-aids.   I had to make the call to my mother to confirm that YES, I do have RA.    Next stop was the pharmacy:

The first time I picked up my medicine from the pharmacy... nine bottles all RA drugs. I was in shock. I couldn't even read the labels. I forgot to ask for easy to open caps, not child safe ones. I had to get two pill box's to hold all the pills. I had to have my husband write it all down on the calender. All the drugs are very powerful. I used to just take Advil. Now I take cancer drugs.

Methotrexate is the first treatment doctors try to treat RA. I heard it was an awful drug. It causes you to be sick to your stomach and it can cause hair loss. I was terrified to take it. I am on my third week now, and so far so good. I am one of the lucky ones. Many people who take this drug get sick and lose their hair... (I am not out of the woods with the hair thing yet).

I see my life changing every moment and in every way. I work with horses, and its physically demanding a lot of the time. My hands hurt and swell up at any given moment. Heck... it all hurts. I have a handicap placard now. I can't have my kids hold my hands any longer...it hurts to much. My husband is afraid to hug me...due to the pain. There is so much change, which I will share along the way..which is why I am writing this blog. To help myself and others.

It is not all doom and gloom. I have found a wonderful support group online. I have found who my closest friends are. I look at life in a much different way now. I am not in a hurry to get it all done now. I have taken time to slow down and see my life and family. I don't get as angry anymore... I let things slide off my back now. So join me on my journey of the positives and not so positives.

I'm Marcy Dyer. When I first got ill, I was very active. I had just obtained my black-belt in Tae Kwon Do and as a single woman, I had quite a few friends who liked to play volleyball and softball on the weekends.

I was the type of person who couldn't sit still. My first symptom was fatigue. Severe fatigue. I remember complaining over and over to my gynecologist. He recommended several different diets but nothing helped. I saw an internist who diagnosed me with asthma and put me on steroids.

I felt great on the steroids but after a while I starting having knee problems. A friend recommended that I see a specialist in Dallas. The specialist drew labs on me and called me a few days later. My RF was positive and he wanted me to see a rheumatologist. He referred me to Dr. Alan Duby in Dallas. Dr. Duby diagnosed me with polyinflammatory arthritis and started me on plaquenil. Over time, with multiple flares, he added medications. In addition to RA, I developed Sjogren's Syndrome which causes very dry mouth and eyes and Raynaud's Syndrome which causes spasms of the blood vessels in the hands and feet when exposed to the cold.

Thanks to my insurance changing, I had to change rheumatologists - twice. My third and current rheumatologist is the one who finally decided this was seronegative RA. My RA titer went negative after starting treatment. All of my rheumatologists have treated me aggressively and as a result, I don't have a severe joint damage as I might otherwise.

My goal is to bring awareness to RA and to educate people on this disease while living my life to the fullest. There are many things I can no longer do but I have faith that God will use me and this illness for His glory.

Mutiny

2011-10-25T13:00:00.000-07:00

For those who suffer from Rheumatoid Arthritis, a mutiny overtakes their bodies. First Captain AID (Autoimmune Disease) invades and then he recruits the immune system to rebel against the body.

He sends some of the immune scurvy dogs to attack the joints. They run to any joint they can find and pull out miniature jackhammers and begin hammering away at the joint until they have destroyed it leaving the person in pain with joints that no longer function correctly.

Next he sends some of his minions out to search and seize every vestige of energy they can find. They scour the body and hunt for any signs of energy then when they find the tiniest bit, the lock it down and throw it overboard. With no energy, fighting this nasty pirate becomes even harder.

Captain AID isn't happy with just stealing energy and destroying joints so he sends out more of his team to suck up and destroy blood cells leaving the body anemic and even more tired.

Sometimes the old Captain decides joint damage isn't enough and he sends the mutinous team to the heart, lungs, eyes, and even ears causing even more damage.

As if this isn't enough, Captain AID often calls in his pals, Captain Sjogren and Captain Raynaud, to wreak their havoc on the body.

Captain Sjogren sends his crew to tap dance in the joints. They jump in right next to AID's crew so one team jackhammers and the other tap dances.

Next Captain Sjogren sends part of his crew to all of the moisture producing glands to stop them up. This leaves the eyes gritty and sandy feeling and can cause corneal abrasions. His havoc doesn't stop there, when he blocks the salivary glands, the mouth becomes as dry as a desert wind.

Captain Raynaud joins the fight. He causes vasospasms in the hands, feet, ears, nose and even nipples. The vasospasms result in very cold extremities and color changes. The extremities can become numb and tingle. In extreme cases, the extremities can ulcerate.

Once the mutiny is identified, we enlist the help of Captain Rheum. He gives us the guns to fight this mutinous crew. We bombard them with guns like Prednisone, Methotrexate, Arava, Remicaide, Enbrel, Humira just to name a few.

Using these big guns exhausts the body even more but they are necessary so we continue to fight the fight and use the big guns so we can prevent even further damage from the Captain and his minions.

These Hands.....

2011-10-21T14:15:00.000-07:00

Our hands are in constant motion. They draw, paint, write, type, touch, feel and even express love. But for someone with RA, those

Courtesy luigi diamanti

hands may become stiff, red, inflamed and painful. At times, they may "lock-up".

We've all seen someone with advanced RA damage in the hands causing severe deformities but what about those who live with RA day to day? It's not always easy to recognize "RA hands". In fact very often the person with RA hears, "but you don't look sick" or even from the medical community "I don't see any signs of RA in your hands."

Someone who is on aggressive treatment for their disease, may not have obvious damage. I asked several of my friends who suffer from RA to send me pictures of their hands. Some of the pictures are of the same hands on different days but they are all photos of hands affected by RA.

No severe deformity but notice the red knuckles on the fingers and across the top of the hand. You can also see swelling in those knuckles.

This hand also doesn't have the severe damage that we often associate with RA and in this photo there is not a lot of redness but notice the swelling across the knuckles at the top of the hand.

This hand shows some curving of the fingers toward the outside of the hand and it shows some swelling.

This hand shows some curvature toward the outside of the hand and the pinkie finger doesn't straighten. There is also some swelling across the knuckles and a little bit of redness.

This hand shows some deformity in the thumb. Notice how it curves outward. Also the pinkie finger doesn't straighten. It also shows some swelling at the knuckles but not a lot of redness.

This hand has some redness and in joints and swelling in the knuckles.

Slight redness and some swelling in the fingers and hands.

Some slight curving in the fingers, mild swelling and slight redness.

Beginning deformity in pinkie finger.

Mild swelling, redness and some curvature.

Swelling in some of the knuckles

Some curvature toward the outside - not much redness or swelling

Swelling and redness in all of the knuckles and the top of the hand.

Swelling and redness with some curvature of the fingers.

These photographs depict real patients living with the day to day pain of rheumatoid arthritis. None of these patients show signs of extensive deformity caused by the RA but that doesn't lessen the pain and decreased ability associated with the disease.

The redness and swelling depicted is an indicator of inflammation. When the hands are inflamed, they are painful, stiff and difficult to use. The inflammation is a sign of joint damage. This damage can lead to the gnarled hands that don't function.

Hand involvement is only a small part of the damage this disease does. It affects not only joints but also the heart, lungs, eyes, hearing, ribs, blood vessels, and blood cells.

While the person suffering from RA may not "look sick", he is. RA is an autoimmune disease that affects every aspect of the sufferer's life.